KOHALA COAST — Big Island community members have teamed with the Myotonic Dystrophy Foundation (MDF) to organize E ha ‘awi i ka mana’ olana (to give hope), a weekend of events and activities set for Nov. 9 and 10 on the Kohala Coast.
KOHALA COAST — Big Island community members have teamed with the Myotonic Dystrophy Foundation (MDF) to organize E ha ‘awi i ka mana’ olana (to give hope), a weekend of events and activities set for Nov. 9 and 10 on the Kohala Coast.
All proceeds from the events will go directly to MDF for research, developing therapies and finding a cure for myotonic dystrophy (DM).
DM is a genetic disease and form of muscular dystrophy for which there is currently no cure. It is often under- and misdiagnosed, yet it is the most common form of muscular dystrophy. MDF works to support families living with the disease, to drive research and treatment and to create awareness of DM in communities across the nation and beyond.
At 5 p.m. Nov. 9, a barbecue at the Mauna Kea Beach Resort will officially kick off the weekend. Starting at 8 a.m. Nov. 10, bike enthusiasts of all levels can participate in the Family Fun Bike Ride to Hawi. A Gala Under the Stars fundraiser will begin at 5 p.m. at the resort including a cocktail reception, beachside dinner, a live auction, traditional Hawaiian food and entertainment. An after-party with a DJ and dancing. The live auction features premium vacation experiences across the globe.
Costs for the events vary, inviting participation at any level. There will be lunch provided for the bike ride and bikes and electric bikes are available to rent. Visit www.myotonic.org/2018-mdf-hawaii-gala-weekend or call Renee at 885-9581 for pricing information and event details.
